I found this site while googling. I have a cousin who lives in Africa. She's only 18-years-old and she has spinal cord defect. I'm not sure if this is early-childhood injury or birth defect. Her spinal cord basically is growing in the wrong direction. Instead of growing streight like a normal person's, it's growing outward. Very curvy in the middle. It's becoming more and more visible. I'm afraid if it continues like this, her head and neck might be forced down. Doctors at Kenya told her if they operate, she'll be paralized. But i'm just wondering if this defect has a medical name or if there's any workaround or if you've ever heard of this type of unfortunate condition. Just researching information to help her.
Hi Neal, I think there is a name for it , my sister had something similar as a child. I will look in to this and try and find out as much information as possible for you. I know that my sister was operated at an early age and she had a steel pin grafted to her spine to stabilize things, it may not be the same in the case of your cousin but lets hope so. I will post a reply here and email you too. Take it steady
Matt, I sincerely appreicate any information you can dig 'bout this. I'm literally at the end of my rope (except for praying and crying when I think 'bout it.)
Hi Neal, well I had a little dig around on the internet and found this site about back problems, I noticed a condition called scoliosis and as far as I know this is what my sister had at a young age. There is a list towards the bottom of that page with links to further infomation about other conditions too. I have contacted my family to see if they had any further information that may help and I will also forward your question on to one of the specialists I know, he may also be able to help with some answers. Cheers Matt
I hope so Neal! It is quite amazing what can be achieved these days, and corrective surgery seems to be a possible outcome. I will let you know if I hear anything from the specialist I have emailed on the subject.
Spinal Cord Defect (might be injury)
Hello,
I found this site while googling. I have a cousin who lives in Africa. She's only 18-years-old and she has spinal cord defect. I'm not sure if this is early-childhood injury or birth defect. Her spinal cord basically is growing in the wrong direction. Instead of growing streight like a normal person's, it's growing outward. Very curvy in the middle. It's becoming more and more visible. I'm afraid if it continues like this, her head and neck might be forced down. Doctors at Kenya told her if they operate, she'll be paralized. But i'm just wondering if this defect has a medical name or if there's any workaround or if you've ever heard of this type of unfortunate condition. Just researching information to help her.
33 posts 2 years, 5 months ago
Hi Neal, I think there is a name for it , my sister had something similar as a child. I will look in to this and try and find out as much information as possible for you.
I know that my sister was operated at an early age and she had a steel pin grafted to her spine to stabilize things, it may not be the same in the case of your cousin but lets hope so.
I will post a reply here and email you too.
Take it steady
Matt, I sincerely appreicate any information you can dig 'bout this. I'm literally at the end of my rope (except for praying and crying when I think 'bout it.)
It paid off. It's called Kyphosis and this is what I found.
http://orthoinfo.aaos.org/fact/thr_report.cfm?Thread_ID=247
Basically performing corrective surgery on 18-year-old spine is managable, i assume. What do you reckon?
33 posts 2 years, 5 months ago
Hi Neal, well I had a little dig around on the internet and found this site about back problems, I noticed a condition called scoliosis and as far as I know this is what my sister had at a young age. There is a list towards the bottom of that page with links to further infomation about other conditions too.
I have contacted my family to see if they had any further information that may help and I will also forward your question on to one of the specialists I know, he may also be able to help with some answers.
Cheers Matt
33 posts 2 years, 5 months ago
I hope so Neal!
It is quite amazing what can be achieved these days, and corrective surgery seems to be a possible outcome. I will let you know if I hear anything from the specialist I have emailed on the subject.